12 Days of Christmas - Stander Style

Put this together after going thru all of my facebook posts from the year.  Thought it was funny.  I'm telling ya - it's going to be a Christmas Classic.  Generations to come will sit around the fireplace on Christmas Eve and sing this song.   

On the first day of Christmas, my true love gave to me

A failed Swiss vacation

On the second day of Christmas, my true love gave to me

Two new cars

And a failed Swiss vacation

...in the interest of time....I'm sure you know how the song goes

On the twelfth day of Christmas, my true love gave to me

Twelve great memories

Eleven dog messes

Ten planned parties

Nine family trips

Eight diva tantrums

Seven teacher meetings

Six-thousand Legos

FFFIIIIIVVVVEEEEE new babies

Four trips to the ER

Three days at Disney

Two new cars

And a failed Swiss vacation

Felt kind of bad I didn't send out a letter this year, so I had to do something!

Top 5 Facebook posts of 2012

Every year for Chirstmas, I send out cards with a fairly lengthy letter.  At the end of our annual letters, I always put the top 5 Facebook posts of the year.  I choose a few different people every year to vote on them.  Since I'm really not feeling the Christmas spirit and didn't write an annual letter, I totally phoned it in and sent out cards with a link to this blog printed on them - I know - shameless, lazy, and a little self-promoting - but at least I sent out something.   So here it is folks, the top 5 Facebook posts of 2012:

....drum roll....

5.  Kids upstairs playing.

Sam:  let's play pirates!

Caroline: or we can play bridesmaids

Sam: (long pause) OR we can play PIRATE BRIDESMAIDS!

4.  Nick's office had Go Texan Day and he was putting on his boots

Caroline: Daddy, you look like a cowboy....except cowboys don't wear sweater vests.

3.  After asking Caroline to do her chores and get ready for school:  "I do EVERYTHING around here!  You don't do a thing!"

2.  Stopped at a stoplight and 2 birds hit my car and fall to the ground.  Sam sees them flopping around and says "Shoot 'em momma!!!!"

1.  Sam: MOM!  I got it!  I got it!!!

Me: What is it?

Sam:  my booger!  I've been trying to get that thing all day!

Honestly, I have the funniest kids.  I couldn't make up this stuff if I tried.  They are so much fun and while they do fight and whine, the laughs are by far well worth it.   

two steps forward, one step back

What we thought was a done deal with being worried about Sam ended up being slightly preemptive.  After Dr. Fernandez told us Sam was fine and we didn't need to worry about anything neurological, I thought we were done.  I would be lying if I told you we didn't pop a bottle of champagne and do some serious celebrating.  It NEVER occurred to me that the blood work our doctor ordered would come back fishy.  Although the doctors we saw in November said "we don't think this is neurological" the blood work says differently.  

So, here we are again at the oh-so-familiar intersection of OK Avenue and Craptastic Way - waiting for some news.  I HATE WAITING.  This time, we wait until January 11 to see a different doctor to get the results of the extra blood work that he ordered and some genetic screening.  While we wait, we are desperately trying to cling to some sanity and get through the days without having a meltdown. It's hard not to get online and google everything the doctor told us on the phone.  It's hard to watch Nick get to where I've been for months - that something is not right.   We're just praying that something was wrong with the tests they ran and not anything with Sam.

I've been talking about Sam and his issues for so long, that I no longer cry when I talk about it.   Is that normal?  I guess it's our normal now.  It's part of everyday life that I tell him to stop walking on his toes or "don't sit like that" or "good job walking up the stairs by yourself".  His physical limitations have become part of our routine.  I feel like whatever the outcome in January, that will become part of life for us.  

Thought I would give everyone an update.  Keep Sam in your thoughts and prayers.  I pray that come January 11, we will have good news and finally start 2013 with a step in the right direction.

Fall Photo Shoot

WARNING!!!!!  Picture overload!  My friend Kristy Owens takes A-Mazing photos.  Look what she did with my family???  She's very talented and I can't wait to use her again.   

In some of these it almost makes you think my kids love each other....

Anyhoo - this is from our photo shoot in October.   

 Look how sweet... 

what she didn't capture on film was that of her brother trying to tackle her in the grass. 

Oh - and me screaming "Don't get dirty!!!!"

My daughter - the photo bomber.  Let's try this again 

Much better 

 In this pic - I was trying to get him to open his eyes more.  

This is what he did instead

Again - SO sweet....

 My sweet Caroline.  Such a diva!  

lots to be thankful for

My heart is so full right now {not unlike my belly from all of this food I've been eating}.  Wednesday we had our appointment at the Blue Bird Circle Clinic for Pediatric Neurology so we could finally get an answer - or at least some insight - into Sam's physical struggles.  Originally, this appointment was for July, 2013 - yes, you read that right.  Fortunately, I had enough sense to call back and see if we could get on the cancellation waiting list for a quicker turn around.  He saw 2 doctors, they evaluated Sam extensively, drew blood and then in walked the big neuro doctor.  I was starting to hyperventilate, until he said those magic words: "Sam's physical limitations are not neurological. AT ALL"  After that we stopped listening and I started crying.  We had to have the doctor repeat everything else - thank God Nick was there to ask again b/c I was a hot mess.  It was such a relief to hear him say that.  They diagnosed Muscular Myopathy - which is just a fancy way of saying muscle weakness.  Course of action is PT/OT {which we've been doing for over 6 months}.  A big part of me knew that it was probably nothing - but in the back of my mind there was a small part that thought perhaps this was Muscular Dystrophy or ALS or PLS or a tumor {just a bit of advice: stay off WebMD if you're concerned about anything health related}.  While we were there and because it's basically protocol, they drew some blood to test his enzymes and do some genetic testing to see if this is something he could possibly pass on to his future children and grandchildren.  And if it is, there's a likelihood that Caroline could possibly be a carrier as well.  Even if it is, this is very minor and very treatable without medication or surgery.

While in the clinic all morning on Wednesday, we encountered many children with huge fights ahead of them.  Children and babies who were SO sick and traveled from all over the world to be at TCH.  Nick and I both agreed that no matter what Sam's outcome was on Wednesday, it was in no way as severe as what the other families there were experiencing.  Puts things in perspective...

Thanksgiving has a truly different meaning after Wednesday.  

good-bye, dear friend

I hate saying good-bye to people.  I've been avoiding this because of being in denial, but the time has come to say farewell to one of my best friends {and one of my favorite people. ever} We see each other daily - and when we don't we're driving Nick crazy texting each other back and forth.  Her kids and mine play together all the time.  And while sometimes they don't get along, they love each other like siblings do.  Kelly and her funny, crazy little family are moving to Florida on Saturday.  I'm going to miss my friend.  I've tried to hold it together, but seeing the moving truck pull up today was hard.  I moved to the suburbs kicking and screaming {in my opinion old people and women who didn't know how to drive their mini vans lived in the burbs} and I was wrong - I have met people I will always consider some of the closest friends I've ever had.  Kelly is one of them.  Florida is lucky to have her.   She's a wonderful person: she listens, she has your back, she isn't afraid to tell you to shut up; she'll pray with you, she'll throw out a well deserved "f" bomb; she thinks she's a terrible cook but makes a mean salad.  She would do anything for her family and friends - and you don't come across many people like her.  I'm going to miss my PCB and our daily play dates with the kids.  The MANY pitchers of vodka limeade in the sac.  The impromptu dinners with our families.  FastPass.  Chloe + Chico.   The list of all the things I'll miss about the Krenzke's is so long.  I know we'll see each other again - so this is just a "see ya later" - Kelly can't get rid of me that easily.  Putting my selfishness aside for a moment - I wish her all the best in Florida and am so excited for her and her family's new adventure.  Miss her already.  Time to start booking my first flight to FL!

something good to say!

I've been a bit absent from blogging lately - quite honestly it's because every time I sit down to blog, I really don't have anything nice to say.  And I don't want you all to think I'm this disgruntled, miserable person - because I'm not.  I am simply following the good ole rule of "if you don't have anything nice to say, don't say anything at all". 

Despite having a ridiculously busy October, I'm happy to say it's over.  The fall festivals, and school carnivals and football games and baby showers.  All over.  So.  Happy.  And while I LOVE being involved with the community and school and throwing my besties and sister fun parties - I'm ready for a break. 

In my spare time {LOL - what spare time???} I've been arguing with our insurance company and pediatrician about proper wording on a prescription for Sam's PT and OT.  Apparently having a physical delay isn't specific enough.  I feel like banging my head against a wall would get better results at this point.  I mean - how can anyone, after evaluating Sam - not think he needs a little help?  The kid can't hop on one foot.  So I've got these appointments with specialists who have 9 month waiting lists to get some kind of diagnosis so we don't have to private pay for therapy any longer....in 9 months.  I'm not a doctor or anything close to it, but what's it to our pedi to write a prescription for PT and OT?  It's not like I'm asking for drugs.  So frustrating.  I'm SO thankful Nick and I are fortunate enough we are able to pay out of pocket twice a week for therapy.  Does it suck?  Hell yeah it does!  It kills me that our incredibly awesome health insurance doesn't cover PT or OT unless it's "restorative".  It's BS.  Really - I can think of some really cute shoes I could buy with that money every week.  :)

And that, my friends concludes this week's installment of "things that piss me off"...

On to better things... the day before my birthday I got this really large, official-looking envelope hand delivered.  I had to sign for it and everything.  After opening it, I realized I was reading the results of my BRAC 1 & 2 tests.  Which were NEGATIVE!  No genetic mutations found.  Best birthday present ever.  {even better than the Gucci bag Nick and the kids surprised me with - I know - I'm shocked too}

I'm really looking forward to slowing down.  I really want to spend time with Victoria before her baby comes.  Hang out with Kelly before she moves to Florida.  I feel like I've been a very absent friend, sister, wife and mom.  November comes quickly and there will be LOTS of babies being born.  Can't wait to hold them all.

Unfortunately, I don't have any pictures of the kids at the moment.  But my next post will be of the adorable photo shoot my friend, Kristy, shot.